My last Doctors appointment was the first one in probably 2 years I did not leave and immediately have an emotional break down over. After every appointment I have the same reaction, with any of my Doctors. I cry. I feel hopeless. I then feel angry. Then hopeless again. Then eventually this level of acceptance … Continue reading Snowy Saturday and an update
Tag: Chronic Illness
The morning fire
I've been living in houses heated solely with wood since I was 16 and left home. You'd think I'd be good at starting fires... and the truth is, I actually can be if I have the right things and take my time. I know how. But in the house I often like to rush in … Continue reading The morning fire
I am in pain.
And because one of my conditions happens to be Sjogren’s Syndrome, I can’t even cry because I cannot produce tears. I cannot cry out of sadness, or happiness, for emotional relief. I am in pain. And it’s all consuming. I hurt from the tips of my toes right up to the top of my head. … Continue reading I am in pain.
The woman I was…
I am grieving every single day for the loss of the woman I was and the woman I had wanted to become. I don't want to live in a place of loss, but it's so hard not to be overwhelmed by it. I have done nothing but loose things and little is reminding me of … Continue reading The woman I was…
This is Sjogren’s Syndrome
So quietly destroying my life and my body. When you first hear about Sjogren's Syndrome, when your Doctor first mentions this odd sounding… weird, disease, you’ll be afraid. Of course you will. What the hell is that? But your Doctor, most of them, will be reassuring. It’s not fun, but it’s treatable and it’s “not … Continue reading This is Sjogren’s Syndrome
Sometimes you just won’t be OK.
You’ve got it backwards…
I'm not faking being ill... I’m faking being well. That’s one of the most honest and well put things I’ve read recently. I spend a decent amount of time writing about, and sharing about, invisible and chronic illness/disease, because I’ve learned through my own battles how important that is, for me, to be open about… As I’ve … Continue reading You’ve got it backwards…
